We developed this interactive curriculum to prepare and inform community representatives about the importance of research ethics. It is important to educate community representatives about their roles and responsibilities so that they have a stronger voice before, during, and after the research process.
This curriculum will inform readers about general principles of research ethics that are shared by geographic, cultural, economic, legal, and political groups around the world. Although these principles are accepted worldwide, it is recognized that cultural interpretations and human and material resources may vary.
In well-designed research, it is very important that all research participants (sometimes called research “subjects”) know and understand:
- That they have a choice to participate or not participate in the research study.
- Why they are in the research study.
- The possible positive outcomes that may happen to them.
- The possible negative outcomes that may happen to them.
- That the research may have neither positive nor negative outcomes for them as individuals.
- That they are free to leave a study even after it starts.
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