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This publication documents the experience of the world's largest international HIV/AIDS prevention project, which was implemented by FHI and its partners in 45 countries. It describes lessons learned during AIDSCAP, with examples and project profiles, in 10 technical and programmatic areas: behavior change communication, improving prevention and treatment of sexually transmitted diseases, prevention marketing, policy development, behavioral research, evaluation, gender and HIV/AIDS, management, AIDS care and support, and cross-border interventions. Table of Contents 1. Behavior Change Communication: From Individual to Societal Change 2. Improving STD Prevention and Treatment 3. Prevention Marketing: Condoms and Beyond 4. Policy Development and HIV/AIDS Prevention: Creating a Supportive Environment for Behavior Change 5. Behavioral Research: Using Results to Design Behavior Change Interventions 6. Evaluating HIV/AIDS Prevention Programs: Developing New Tools for Meaningful Measurement 7. Women, Men and HIV/AIDS: Building Gender-Sensitive Programs (See Below) 8. Managing HIV/AIDS Programs and Building Capacity to Sustain Prevention Efforts 9. Prevention and Care: Mutually Reinforcing Approaches 10. Crossing Borders: Reaching Mobile Populations at Risk 7. Women, Men and HIV/AIDS: Building Gender-Sensitive Programs One of the most significant changes in HIV/AIDS prevention during the second decade of the epidemic has been a growing appreciation of the need to reduce women's vulnerability to the virus. Once considered a disease of homosexuals, injecting drug users, sex workers and other "high-risk" groups, HIV/AIDS is now recognized as a serious threat to most sexually active women -- including those who are monogamous. Rising rates of HIV/AIDS among women and young girls throughout the world confirm that they are at increasing risk of infection. Worldwide, the proportion of adults living with HIV/AIDS who are women rose from about 25 percent in 1990 to 42 percent in 1995. By the year 2000, the annual number of AIDS cases among women will equal or exceed those among men. Today six out of ten new infections worldwide occur in women 15 to 24 years of age, and in that age group, twice as many young women are infected as young men. Biology plays an important role in women's heightened susceptibility to HIV. In fact, sexual transmission of the virus is at least four times more efficient from men to women than from women to men. But research and experience have shown that the imbalance of power between men and women is at the root of women's vulnerability to HIV. Women's economic dependence on men and society's acceptance of different standards of sexual behavior for men and women put women at risk and make it difficult, if not impossible, for many of them to negotiate safer sex with their partners. During the past six years, AIDSCAP and other international organizations have begun to define a more gender-sensitive approach to prevention that addresses some of the root causes of HIV's rapid spread among women. Based on a deeper understanding of the economic, legal and social factors that fuel the epidemic, this approach aims to educate policymakers about the deadly consequences of gender inequities, empower women to protect themselves from unwanted and unprotected sex, develop and test prevention methods that women can initiate and control, improve communication between the sexes, and give boys and girls positive models of mutually supportive relationships between women and men. AIDSCAP advanced a gender-sensitive approach to HIV/AIDS prevention through pilot interventions, training of policymakers and grassroots leaders, research and information dissemination. Millions of women and girls acquired knowledge and skills to help them reduce their risk of HIV infection, and hundreds of policymakers, health care providers, educators and grassroots leaders -- both men and women -- were sensitized to the gender aspects of the epidemic. The reach and scope of the activities and interventions described in this chapter and in previous chapters reflect the success of AIDSCAP's efforts to institutionalize a gender perspective in its own programs and those of its partners. Through its Women's Initiative, established in 1994 with support from USAID's Office of Women in Development and HIV/AIDS Division, AIDSCAP integrated a gender focus into many existing projects, expanded a number of interventions to address broader issues of gender inequality and women's social and economic empowerment, and developed dozens of new projects and activities. With the creation of the Women's Initiative, AIDSCAP staff and their partners were challenged to take a critical look at their projects and programs to ensure that they addressed the needs of women. The results ranged from the development of regional and national gender and HIV/AIDS strategies, such as the one developed for the Latin America and Caribbean region (Box 7.1), to incorporation of seemingly small but critical design features. In India, for example, AIDSCAP-supported NGOs found innovative ways to reach Indian housewives who would not have been able to attend other public HIV/AIDS education events, combining outreach efforts with competitions in traditional household arts.1 Worldwide, AIDSCAP was successful in gaining widespread acceptance among its partners of the importance of collecting and analyzing separate evaluation data on men, women, young women and young men in order to understand the true impact of their interventions on these populations.
Many of the most innovative gender initiatives were additions to projects already underway. A South African prevention project targeting sex workers and their clients and partners was broadened to address the harassment and violence that the women often face from law enforcement officers and clients (Box 7.2).2 An Ethiopian NGO gave its young peer educators gender training and created a drop-in center where facilitators encouraged discussions between young men and women about sex and sexual risk.3 And a Senegalese project built on an earlier intervention with market women to use their credit associations to help a particularly vulnerable group of market women and their daughters learn to access credit and protect themselves from HIV/AIDS.
AIDSCAP programs also designed new projects to address the expanding epidemic among women. Examples include training and supporting HIV-positive women to serve as outreach educators in Thailand,4 integrating STD treatment and prevention into family planning services in Nepal (Box 7.3), creating a dynamic mass media campaign in the Dominican Republic emphasizing women's right to protect themselves from HIV infection, and training women community leaders in Honduras as advocates for better sexual health education and HIV/STD prevention services.
Financial and technical support from the project encouraged governments and other groups working in HIV/AIDS prevention to devote more resources and attention to gender-sensitive activities. In Haiti, for example, AIDSCAP sponsored a series of forums to encourage collaboration between governmental and nongovernmental organizations and to reach consensus on recommendations about women and HIV/AIDS for the National Plan of Action on HIV/AIDS. The Honduran Women's Government Office worked with AIDSCAP's office in that country to develop strategies for reaching rural women with prevention messages and activities. And in India's Tamil Nadu State, an AIDSCAP grant supported the creation of a network of influential women, including policymakers, health care providers, lawyers, journalists, educators and film stars, to advocate for legal, economic and social change to reduce women's risk of HIV infection. Collaboration with other development organizations, particularly women's groups and networks, was a key strategy. One of the most successful collaborations, a coalition of ten organizations spearheaded by AIDSCAP, raised awareness about HIV/AIDS in women at the United Nations Fourth World Conference on Women in Beijing in 1995 by organizing 14 panel discussions, two film festivals and three press conferences and distributing over 50,000 printed materials. In 1996, AIDSCAP and UNAIDS cosponsored a journalists' contest to encourage accurate reporting on HIV/AIDS and women that attracted almost 200 entries from 50 countries.5 And in 1997, AIDSCAP brought together 130 scientists, policymakers, women's advocates and program managers from 19 countries to develop recommendations for increasing access to and use of the female condom. AIDSCAP-sponsored studies on the female condom featured an innovative research design to explore introduction of the device through women's organizations. Conducted in Brazil and Kenya in 1996, the research gave women from all levels of society an opportunity to try female condoms and demonstrated the potential for women's peer support groups to sustain the use of this woman-initiated device.6 Other AIDSCAP studies identified ways to improve communication between Kenyan mothers and their daughters, Senegalese market women and their male suppliers and partners, and young Dominican men and women. Research results and tools developed by AIDSCAP's Women's Initiative (AWI) will continue to help other organizations and programs carry out more gender-sensitive HIV/AIDS interventions. The initiative created the first training manual developed specifically for integrating a gender perspective into HIV/AIDS policies and programs, based on training workshops held for policymakers and NGO leaders from five countries. (Box 8.2).7 And a resource guide on the use of dialogue as an HIV/AIDS prevention strategy will promote more constructive communication between men and women about sex, sexuality and HIV/AIDS prevention.8 The Women's Initiative's most important legacy, however, may be its contribution to raising awareness about the need for a gender-focused approach to HIV/AIDS prevention. Working in close collaboration with members of its Women's Council and with other HIV/AIDS and women's organizations, AIDSCAP sought to educate policymakers and programs managers through information dissemination and advocacy. These efforts helped put women and HIV/AIDS on the agendas of international organizations, national governments and local organizations, contributing to the growing recognition that slowing the spread of the epidemic requires fundamental changes in gender power relations between women and men. Gender Sensitivity
AIDSCAP's experience confirms that policy and resource support are essential for institutionalizing a gender perspective. By providing an explicit focus on gender and the resources needed to carry out training, research and interventions, the project's Women's Initiative made it possible to achieve a broader integration of gender concerns into AIDSCAP policies and programs. A core staff of four professionals at headquarters and designation of an AWI "point person" in each of AIDSCAP's three regional offices and many of its country offices ensured that analysis and monitoring of gender concerns occurred throughout the project. Support from USAID's Women in Development Office, USAID Missions and AIDSCAP core funding enabled resident advisors to devote more resources to identifying and addressing gender issues, empowering women, involving men in efforts to protect women and girls from HIV/AIDS, and improving communication between the sexes.
Gender training workshops sponsored by AWI for project staff, implementing partners and policymakers inspired participants to initiate gender-focused programs and activities. For example, participants in a 1995 gender and AIDS training workshop AIDSCAP conducted for 41 policymakers and program managers in five eastern and southern African countries agreed that it had improved their understanding of how to recognize and analyze gender issues and integrate them into HIV/AIDS prevention policies and programs. Projects with a gender perspective were launched in each of the participating countries (Box 7.2) And in the Latin America and the Caribbean region, AIDSCAP resident advisors and their implementing partners used the gender analysis skills they had acquired at an AIDSCAP regional workshop to develop pilot intervention and research projects to improve HIV/STD prevention services for women across the region (Box 7.1). Dialogue
AIDSCAP promoted the use of dialogue, designed to give men and women the gender awareness and skills they need to communicate openly and honestly about sex and other issues that affect their sexual health, at the interpersonal, community and policy levels. Representatives from 27 countries who helped field test the methodology in a satellite meeting at the XIth International Conference on AIDS in Vancouver responded enthusiastically, calling this initiative "long overdue." One woman noted that dialogue is "the only way that women can approach men in my culture. We cannot 'negotiate' with our men." After the meeting, groups from around the world requested assistance in replicating the dialogue among policymakers, communities and couples. Most participants in the first operations research project to test the dialogue process -- a series of facilitated sessions with truck drivers and their spouses conducted in Jaipur, India, in 1997 -- reported that the experience made them feel comfortable discussing sexual matters with spouses and friends. Many of the truck drivers said they had started to use condoms with their spouses for the first time. These encouraging results convinced the John D. and Catherine T. MacArthur Foundation to fund a two-year pilot intervention using the dialogue process with Indian truck drivers and their wives.
In Zimbabwe, for example, the Women and AIDS Support Network found that initially it was better to separate boys and girls for school-based HIV/AIDS education sessions, giving the girls opportunities to ask questions without feeling inhibited. Once the girls gained confidence in their ability to discuss sexual issues, they asked that the boys be included in future sessions. And in the operational study of the dialogue process with Indian truck drivers and their spouses, only one of the five facilitated sessions involved a mixed-sex group. The researchers found that they had to convene single-sex groups for the other rounds of dialogue because of cultural constraints against unacquainted women and men discussing sexual issues. Nevertheless, participation in these groups helped truck drivers and their wives talk to each other about sex and sexual health. Policymakers and policy influencers meeting at a national conference organized by AIDSCAP in New Delhi in May 1997 recommended same-sex approaches as a means of initiating dialogue between women and men on HIV/AIDS programs and policies as well as personal protection. Men as Prevention Partners
Research data from around the world consistently demonstrate that many women's risk of HIV stems from their partners' unsafe behavior, not their own. In most societies, men still have greater control over sexual decision making than their female partners, and are in a better position to act on messages that focus on individual behavior change. Moreover, AIDSCAP found that strategies for empowering women were most successful when they involved men as well. In Nigeria, for example, several AWI projects reached out to include men after the women they were working with said that it would be easier to use their new skills if their male partners were also aware of the importance of prevention. In Brazil, the NGO Grupo Pela Vida expanded a project that offered education and facilitated discussion about HIV/STD risk reduction in the waiting room of a large gynecological clinic to reach the primarily male clientele of a tuberculosis and pneumonia clinic at the same health center and to encourage discussion about HIV/AIDS among male and female clients.
For example, gender-sensitivity training for drivers of Kenyan matatus (vans that serve as informal public transport) succeeded in convincing the young men to be more courteous to female passengers by appealing to them to treat all women as they would like their mothers, sisters, wives and daughters to be treated. They were also encouraged to extend the same courtesy to their partners. A study at two Haitian clinics revealed that the most important motivations for men to seek STD treatment were preserving fertility and ensuring healthy offspring. Woman-Initiated Methods
AIDSCAP's research in Kenya and Brazil, as well as UNAIDS-sponsored studies in Costa Rica, Indonesia, Mexico and Senegal, found that group discussions with peers helped women overcome obstacles to using the female condom, including unfamiliarity with the device and the need to communicate with one's partner about its use. During the sessions, women encouraged each other and shared strategies for introducing female condoms into a relationship.
In AIDSCAP's studies in Brazil and Kenya, 70 percent of the Kenyan women and 97 percent of the Brazilian women said that they would like to continue using female condoms after the research ended. The majority of their male partners also wanted to continue using the new condoms. While none of the women were able or willing to buy male condoms regularly, most said they would be willing to pay for female condoms if they were available. Results from acceptability and intervention research discussed at a conference on the female condom AIDSCAP convened in suburban Washington, D.C., in May 1997 support these findings. For example, successful pilot projects in Bolivia, Guinea, Haiti, South Africa and Zambia demonstrated that women and men will buy female condoms at prices about twice as high as male condoms. Women's Organizations
More than 70 percent of the projects funded under AWI were carried out by women's groups, which provided the access and structure needed to reach women and built on the formal and informal support networks women themselves had established. Through these groups, AIDSCAP helped influential women become spokespeople and advocates for HIV/AIDS prevention and other women's health and development issues in their communities. In Nigeria, for example, working with five established women's organizations enabled AIDSCAP to institutionalize discussion of HIV/AIDS prevention and other health issues among groups that reached hundreds of women and girls and their families and friends. Now these issues are on the agenda for each regular meeting of the Federation of Muslim Women's Associations Nigeria (FOMWAN) in Jigawa State and of several branches of the NGO Women in Nigeria (WIN). Women trained by WIN/Cross River State started grassroots women's health clubs to continue to disseminate information and promote health-seeking behavior, while the market women's daughters trained by WIN/Lagos formed peer leader groups to help them continue educating other youth in the market. Working with women's organizations that addressed other health and development issues also encouraged a more integrated approach to HIV/AIDS prevention. In Senegal, for example, HIV/AIDS interventions for market women were carried out by an organization that also provides credit and literacy programs, establishing a link between prevention education and practical measures to empower the women. And in Honduras, the Association for the Development of Youth and Rural Women integrated HIV/AIDS and STD prevention with credit programs and other efforts to improve the lives of rural women by training 20 women leaders from communal banks and solidarity groups. These women became facilitators for discussions about HIV/AIDS, sexuality, domestic violence and women's rights in their communities.
Although AIDSCAP found many women's organizations that were eager to implement prevention interventions and others that had already begun to do so, some groups did not want to address HIV/AIDS. Leaders of some development and family planning organizations thought that such work would dilute their mission, while others feared it would stigmatize their organizations. Fear of stigma was most common in countries or regions with less advanced epidemics. Education and advocacy are needed to sensitize women's leaders to the threat HIV/AIDS poses to all women and to promote an understanding of how HIV/AIDS organizations and women's groups can work together to achieve shared goals.
Understanding Stable Relationships Few studies have explored the dynamics of sexual communication and control between couples. More research is needed to understand how to help couples develop safe, respectful, mutually satisfactory sexual relationships. Increasing Women's Options The enthusiastic response to the female condom in studies and pilot projects throughout the developing world confirms the urgent need for HIV/STD methods that women can initiate and control. Female condoms are a promising option, but their cost has limited their availability to all but a handful of countries. Research to develop microbicides that protect women against HIV and other STDs and simultaneous efforts to improve access to affordable female condoms must be a top priority for prevention programs. Integrating Reproductive Health The promise of integrating family planning, HIV and STD prevention, and STD treatment services to reach millions of women through family planning, maternal-child health and primary health care clinics has yet to be realized. Obstacles include inadequate resources, providers' reluctance, a lack of clear technical guidance on how to provide integrated services in different settings, and an emphasis on treating and counseling women rather than couples. Operations research is needed to address these constraints to achieving a truly integrated approach to reproductive health. Empowering Women In many developing countries, women's vulnerability to HIV/AIDS will continue without fundamental changes in their social, economic and legal status. Income-generating activities linked with HIV/AIDS prevention can empower some women to protect themselves from infection, but the scope of such activities is far too small to have a significant impact on the status of women in society as a whole or on the spread of the epidemic among women. Political commitment, human and financial resources, and true collaboration among health and development agencies and organizations are required to empower women through legal reform, education and greater access to employment and credit. References
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